珍惜当下:一个胰腺癌患者家属的心路历程(二)
父母就像空气一样,当他们在的时候,你会觉得理所当然,不知感恩地享受他们的爱和帮助。只有当他们离去或者将要离开的时候,才会体验到他们的珍贵和对他们的感激,而那种失去父母的痛苦,就像无法呼吸的感觉一模一样。尽管在我们成长过程中,经历了叛逆期与父母的对峙,但在这一刻都可以和解。
接着上回说的,父亲检查出了胰腺癌,下一步自然是要考虑治疗的问题。在网上查阅相关资料,并且用AI检索询问得到的答案,让人绝望。胰腺癌号称癌中之王,80%以上的患者发现时就是晚期,没有手术机会。而在不能手术的情况下,不进行任何治疗,生存期只有3到6个月。经过治疗,并且治疗有效的情况下,也很难超过一年。即使经过手术,大部分还会复发,五年生存率还不到10%,真正的九死一生。
但是看病还是得找医生。于是我们又去找到给我们开检查的那位专家,将增强CT的片子给他看了。虽然从网上了解到的情况是,这个病即使化疗效果也非常有限。看病的目的也就是想了解有没有必要化疗,如果徒增治疗的痛苦,收效又有限的话,就只能选择对症治疗。
那位专家看了片子之后就说“这个已经不能手术了。”了解到我们的难意之后说:“这个对症治疗就完了。”语气中颇有些不屑,但他似乎也觉察出有些不妥,才缓和语气继续对我们说:“这个已经很晚期了。”他是外科主任,也不好和我们多说,就说:"这样吧,你再去肿瘤科看一看。"
虽然这位专家的语气让人很不爽,但也透露出了实情,就是爸爸的病情已经很严重了,没有继续折腾的意义了。但是我们还是去找了肿瘤医生。一来再多听几个医生的意见,二来准备找一个好一些的中医,始终要给爸爸一点没有放弃治疗的心理安慰。
看中医要办理一个慢特病的门诊医保,报销一部分费用,需要医生出具一个诊断证明书。结果这位医生也没看片子,看我们的检查报告单就说“这是癌王!家属自己考虑要不要化疗。化疗的话也就是延长两、三个月”,爸爸年纪大了,化疗也治不好。我们说不想受那个苦,准备选择中医。她说:"我是西医不懂中医。"我们说“就是请您出具一个诊断证明,我们好办理重症的门诊医保。”她说:“不能给证明,你们得做穿刺,有病理报告才能给你们出具。”
这几次看病都是在武汉最高水平的医院,可以说体验很不好。没有得到任何帮助,也体会不到医生对患者的同情,从患者角度出发,只有各种条条框框的限制。当然也不能全怪医院,我爸爸这个病,在世界医学界也是难题。这家医院都没办法,那可真就是没有办法了。
Parents are like air, and when they are around, you take them for granted and ungratefully enjoy their love and help. Only when they are gone or will be gone will they experience their preciousness and gratitude for them, and the pain of losing a parent is the same as the feeling of being unable to breathe. Although in the process of growing up, we experienced a rebellious period of confrontation with our parents, but in this moment can be reconciled.
As I said last time, my father was diagnosed with pancreatic cancer, and the next natural step was to consider treatment. Looking up relevant information on the Internet, and using AI to retrieve the answers obtained by the inquiry, people are desperate. Pancreatic cancer is known as the king of cancer, more than 80% of patients are found in the advanced stage, there is no chance of surgery. In inoperable cases, without any treatment, survival is only three to six months. After treatment, and treatment is effective in the case, it is difficult to more than a year. Even after surgery, most of them will recur, and the five-year survival rate is less than 10%, which is a real near-death experience.
But you still have to see a doctor. So we went back to the specialist who had examined us and showed him the enhanced CT scan. Although from the information on the Internet is that this disease even chemotherapy effect is very limited. The purpose of seeing a doctor is to understand if there is no need for chemotherapy, if the pain of increased treatment, and the effect is limited, you can only choose symptomatic treatment.
The specialist looked at the scan and said, "It's inoperable." After understanding our difficulty, he said, "This symptomatic treatment is over." There was some disdain in his tone, but he seemed to sense something was wrong, and then softened his tone and continued to tell us: "This is very advanced." He was the chief of surgery, and he didn't want to tell us much, so he said, "Well, you go to the oncology department again."
Although the expert's tone made people very uncomfortable, it also revealed the truth that dad's illness was already very serious, and there was no point in continuing to toss. But we went to the oncologist anyway. First, listen to a few more doctors' opinions, and second, prepare to find a better Chinese medicine, and always give dad a little psychological comfort without giving up treatment.
See Chinese medicine to handle a chronic disease outpatient medical insurance, reimbursement of part of the cost, the doctor needs to issue a certificate of diagnosis. As a result, the doctor did not look at the scan, looked at our examination report and said, "This is cancer king!" Families decide on their own about chemotherapy. Chemotherapy is to extend two or three months ", dad is old, chemotherapy can not be treated. We said we didn't want to suffer and were going to choose Chinese medicine. "I'm a Western doctor who doesn't understand Chinese medicine," she said. We said, "Just ask you to issue a diagnosis certificate, so that we can handle the severe outpatient medical insurance." "I can't give you a certificate," she said. "You have to do the piercing, and I can only give you the pathology report."
These visits were all in the highest level hospitals in Wuhan, and it can be said that the experience was very bad. There is no help, and there is no sympathy from the doctor for the patient. From the patient's point of view, there are only various restrictions. Of course, the hospital can not be blamed, my father's disease is also a problem in the world's medical community. If this hospital can't help it, then it really can't.
Upvoted! Thank you for supporting witness @jswit.
可恶的椅子啊奶