Why Does My Everything Hurt? [The Unspoken Struggle Of Those Living With Fibromyalgia]

in #busy7 years ago

I usually try to keep quiet about this mystery illness in hopes that if I ignore it, it'll go away. Mind over matter right? If I consistently complain about a problem that nobody can do anything about, I am only causing them pain, that is if they have any shred of empathy. Eventually they will realize that loving me is a lost cause, and it would be better for us both if I was left alone to wait out my sorry life. However I have been blessed in this era of my life to have gathered up a family of friends and a significant other that have assured me that my life is worth living.

I know that pain is just one of the necessary evils that bring balance to this world, and it is probably the most significant unifier of humankind.

I've had so many hopes and dreams shattered by this illness, and was left with nothing but the question, "Why am I here?"

I am here to know pain on an intimate level so that I may better understand how to help other people cope with theirs. I have used my body as a lifelong guinea pig to test out various foods, natural remedies, yoga techniques, environmental factors, and ways of thinking. If it even comes close to helping me, it'll probably help someone else. And if I can help someone else, I get relief from the pain of the world as a whole.

I know what it's like to want to die, so I'm here for anyone who wants to talk.
I know what it's like to need a massage, so I give the best damn massages I can muster.
I know what it's like to fight alone in a losing battle to my body and my mind, so I want you to know that you are not alone. Come talk to me. Ask me anything. We can fight this together.

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So what the heck is Fibromyalgia?

Causing widespread pain to an estimated 5.8 million people in the United States, Fibromyalgia is a musculoskeletal disorder that amplifies the way the brain processes pain, often leaving the body’s pain receptors in hyper drive.

The condition causes widespread pain—and in turn fatigue, sleep deprivation, and depression—and typically begins following some type of severe physical trauma, such as an accident, surgery, or massive psychological stress.

Fibromyalgia patients complain of a myriad of symptoms associated with pain throughout the entire body. Here are the ten most common symptoms of fibromyalgia…

Pain

Pain is the definitive symptom of fibromyalgia, but it can present itself in different ways, and in different parts of the body. Some people complain of constant stabbing pain throughout their entire body, while others experience a duller form of continuous aching. Alternately, fibromyalgia pain can be localized to one or more areas of the body, or it can seem to cluster around multiple “pain centers.”

One of the most vexing things about fibromyalgia is that the pain it causes has no apparent cause. Yet, some patients say that they do experience some identifiable pain triggers. First, changing weather conditions (rising pressure, falling pressure, changes in humidity) can make the pain more intense, or “wake the pain up” after a latent period. Others experience a sharp increase in their fibromyalgia pain if they are dealing with professionally or emotionally stressful situations, suggesting that the pain may have a strong psychological component.

Sensitivity to Touch

There are two medical terms which cover the increased sensitivity to touch that most fibromyalgia patients experience: hyperesthesia and hyperalgesia. Hyperesthesia describes an increased sensitivity to the sensory input of touch; for example, being under a light blanket may make you feel as though you’re trapped under a heavy lead weight. Hyperalgesia, on the other hand, describes an increase in pain sensation; for instance, you might stub your toe on a table leg, only to feel an excrutiating and throbbing pain for hours or days afterwards.

In extreme cases, both hyperesthesia and hyperalgesia may become so pronounced and severe that the patient is functionally unable to participate in routine activities. Some fibromyalgia patients describe a sort of cycle associated with these symptoms. Sensitivity will flare up and symptoms will worsen, then it will alleviate and the patient will be able to return to their normal activities…until the cycle starts all over again.

Environmental Sensitivity

People with fibromyalgia typically experience sensory abnormalities that go beyond sensitivity to touch. They are often strongly affected by environmental influences – even ones that seem minor to most other people. Such symptoms usually involve the patient’s senses of smell, sound and sight.

For example, a person with fibromyalgia may be extremely sensitive to cigarette smoke, or feel nauseous upon stepping into a freshly painted room. Chemical-based cleaning products also seem to trigger these types of sensitivities, to the point where the patient is unable to use them or be in an area where they were recently used. Sounds in a moderate volume range can seem extremely loud, and can even cause headaches and other extreme reactions. Lighting levels usually affect the patient’s sense of sight; lights may seem unbearably bright, even when they are at normal levels, and even if the patient is in a familiar environment.

Muscle & Joint Stiffness

Fibromyalgia can also cause feelings of stiffness in muscles and joints. While it’s normal to experience these types of sensations after periods of strenuous physical activity, people with fibromyalgia develop muscle and joint stiffness for no immediately apparent reason. Like fibromyalgia pain, this stiffness can be generalized throughout the body, or it might affect one or more localized muscle or joint groups.

Some fibromyalgia patients say their muscle and joint stiffness is worse first thing in the morning, or after they have been sitting down or motionless for an extended period of time. This, in and of itself, is fairly normal, especially in older people. However, people with fibromyalgia do not experience significant relief after they get up and start moving around again. In fact, in some fibromyalgia cases, movement can worsen rather than relieve muscle and joint stiffness. Over-the-counter medications don’t usually offer sustained relief, either.

Muscle Spasms

Minor muscle spasms are something most people experience from time to time. However, fibromyalgia patients tend to experience extreme spasms, even after medical investigations uncover no root physical cause of the problem. Muscles seem to go into spasms spontaneously; sometimes, one or more specific muscles is affected again and again. In other cases, the patient finds it impossible to predict where the next spasm will strike, since it could happen almost anywhere and at just about any time.

Generally, though, fibromyalgia muscle spasms follow a pattern. They affect one particular muscle group again and again, and the most intense spasms will occur at night. These spasms can be intense enough and painful enough to disrupt sleep. Such spasms also happen with little to no warning, and they can still happen even if the patient takes extra care to rest and avoid straining affected muscles or muscle groups.

Exhaustion

Chronic fatigue and exhaustion also occur in a large percentage of fibromyalgia patients. Doctors believe it has two root causes. First, the fibromyalgia syndrome itself seems to drain patients of energy, even if they aren’t overexerting themselves physically or mentally. In other words, fatigue and exhaustion are core symptoms of the condition, and occur for no other reason.

However, a growing body of researchers believe that the fatigue and exhaustion symptoms may be exacerbated or even caused by sleep disturbances. The pain and muscle spasms caused by fibromyalgia cause most sufferers to lose sleep. Over time, this chronic sleep deprivation can lead to constant feelings of tiredness, which becomes a vicious cycle when the patient tries to sleep and can’t because of the pain. Regardless of the root cause, the chronic fatigue and exhaustion caused by fibromyalgia will eventually take a toll on the immune system, and cause the patient’s energy levels to plummet.

Trouble Concentrating

Memory and concentration also seem to be affected by fibromyalgia, though researchers aren’t quite sure whether this is part of the condition’s chronic fatigue and exhaustion syndrome, or whether it has different causes altogether. What is known is that the patient’s short-term memory can be noticeably compromised. Patients have a hard time retaining information, recalling newly learned facts and skills, and tend to find it very difficult to sustain concentration for an extended period of time.

Some patients complain of a pervasive feeling of mental sluggishness or cloudiness. This condition has earned its own nickname: “fibro-fog.” The cognitive impairments associated with fibromyalgia are most likely caused by ongoing sleep loss, but some researchers aren’t sure it can be explained away so easily. There is some evidence to suggest that the condition may actually inhibit the brain’s ability to function normally by interfering with its synaptic pathways.

Chronic Headaches

Many fibromyalgia patients report experiencing persistent headaches or migraines, which can be very severe and debilitating. Headache pain usually presents as a feeling of constant pressure or throbbing affecting the cranium and/or the temples. It is also common for headache pain to seem to extend further down the body, into the neck, shoulders and even the upper back.

Some people suffering from fibromyalgia claim that their headaches are often triggered by environmental sensitivities. As mentioned earlier, bright lights, strong smells and loud sounds can all seem far more intense to a fibromyalgia patient. Many times, a patient reports feeling fine until encountering one of these environmental triggers, after which a headache sets in. That headache may not go away for hours or even days, even after the patient moves into a trigger-free environment. In some cases, fibromyalgia headache pain can be strong enough to cause ongoing sleep disturbances.

Bowel Troubles

Fibromyalgia can also cause bowel disturbances, putting the patient at risk of developing a condition known as irritable bowel syndrome or IBS. In fact, fibromyalgia and IBS have very high comorbidity rates, suggesting that there is indeed a definitive link between the two. From a general standpoint, the muscle stiffness and generalized pain caused by fibromyalgia often cause patients difficulty in passing bowel movements. Over time, impacted fecal matter becomes even more difficult to clear, which can lead to reliance on and overuse of laxatives, which itself can cause further complications.

In other instances, patients experience diarrhea rather than constipation, or an urge to evacuate the bowels even when the intestines are empty. As with most other symptoms of this mysterious condition, researchers aren’t quite sure of the root causes. Thus, treatment of bowel disturbances is palliative, and aimed at relieving the most pressing symptoms.

Depression

From an emotional and psychological standpoint, people with fibromyalgia are at increased risk of developing chronic depression. In all likelihood, this depression results from having to deal with constant pain, loss of sleep, lack of energy, and being forced to give up activities the patient once enjoyed. As with fibromyalgia headaches, researchers aren’t sure whether the proverbial chicken or the proverbial egg comes first; depression may not be the result of a patient’s will wearing down over time, but rather, they could be caused independently, through changes in brain chemistry.

For patients, the good news is that fibromyalgia seems to respond well to certain antidepressants. These drugs don’t just help relieve the symptoms of depression, but they also seem to calm down the constant pain, muscle stiffness, muscle spams and other physiological symptoms of the syndrome. Your doctor may prescribe them even if you haven’t developed any symptoms of depression.

Information source: http://www.activebeat.com/your-health/the-10-most-common-signs-of-fibromyalgia/?x-class-type=Class-B

If you can't figure out what to do with all your hard earned SBD, perhaps consider donating a portion of it to an organization that would put it to good use by tirelessly researching new methods of treatment, and hopefully someday finding a cure.

http://www.fmaware.org/donate-nfa/

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love the beautiful post, good luck comrades

nice and lovely post enjoy reading it

My wife has the same mystery illness that was discovered recently. I don't know what to do with her. The relationship between us has gotten worse. I try to support her how i can, but not knowing from where it came and how to treat it makes me mad. She is going to some procedures they are not cheep. But if that helps a little bit then it's worth it. I hope that researchers will find some cure. Thanks for info and heads up on this topic. I hope you will get well. God bless and keep on steeming.

I'm sorry to hear about your wife. And I know how hard it is for you too. Does she adhere to a strict diet, prohibiting gluten, dairy, and processed foods? Because of my digestive issues, I have trouble absorbing nutrients, so I have to take multivitamins to cover it all. Collagen and omegas are a godsend. Chlorophyll helps oxygenate the blood and get it flowing to all the body parts. Goji berries are MAGIC. And if you could try to give her massages whenever possible, it is the greatest gift you can give her. It not only helps with the pain, but she's got a lot of built up toxins and lactic acid that need to be broken up and released. I also advise you guys to keep from using perfumes or chemicals in your house, as they can trigger instant migraines.

She is just starting to threat herself she have been a vegan for some time, but because of her job where she eats there was some dairy and gluten products that she ate. But now she is on sick leaf staying home she thinks to try gluten free diet. Thanks for advices. Good luck to you too.

I went vegan for awhile for moral and health reasons, until I realized that everyone's body is different, and my body specifically needed certain things that I could only find in animal products. Even with all the superfoods, my body just fell apart. I manage to get all my non-vegan needs met through supplements, bone broths, and very occasionally, chicken. These are just my experiences though. I hope your wife can find a diet that doesn't compromise her moral code. Best of luck to you both too, and if you make any discoveries, please do keep me informed :)

Ty for the spoons @flaccidfervor! I believe there are also many different degrees among fibromyalgia sufferers. We believe my aunt has fibro and has been dealing with much of what you describe.

The nueral cranial restructuring i keep talking about, i believe can help fibro patients. On just my 1st series i had major relief! It loosened my whole body took major tension out of my skull, cleared my mind and released some emotional stress on the body. I also had 30days where i could literally feel my whole body shifting and also had much relief. It can stir things up especially in the beginning, i had 2 major attacks following the 1st couple days then ahhh so much relief. %80 of your nervous system is inside the skull and this is def a powerful therapy (ive done many dif 1s). I would recommend any pain sufferer to try and even people w no issues as it can really release alot. People often do it for spiritual experience and athletes do it for improved performance.

Anyway i cant wait for my next session and will keep you posted on my results.

Again ty for your spoons and sending you healing vibes))))

Wow, that NCR hoopla sounds too good to be true! But so does a lot of unconventional medicine that is actually used to treat the root causes of issues. I know that from years of pain and tensed muscles, everything has gone out of alignment, and it all just gets stuck that way, and it's going to take a more direct approach than just pain management. May I ask how much you payed for that treatment?

Yes trust me i researched it for over a year and was highly skeptical and fearful but when i exhausted many other avenues and the pain was increasing and i found a guy in miami, dr Arrandt (about 2hrs from my house) i decided fuck it.

I immediately loved Dr Arrandt, he was very much on my level. Then he does these weird test on you and i was thinking "this is bullshit" but then he went directly, directly to my pain areas without me saying anything. In the very 1st treatment, major relief! Also he let me know i have a very chronic case. When he checked my father he told him he didnt need the treatment but told him he probably has vertigo, which he does. Again my father said nothing.

Most chiros that work on my pops vertigo send him into attacks. This guy dr Arrandt worked on my dad and has majorly improved his vertigo by very minor adjustments (not ncr) he also worked on him free of charge.

Most charge $1000 for a series (4 treatments in 4 days). Ideally you want to go once a month. Everyone responds different and the amount of treatments needed vary. Ive met people who have had ailing problems for years het FIXED on the first day.

Ive had millions of head and neck injuries through the years as i Was an athlete and very extreme person.

I very well maybe one day be writing a NCR saved my life story. Either way im going thru all the treatments and will be tracking my experience.

Like other therapies that didnt "fix" me, i still felt there power amd would recommend to certain people.

NCR has been the most powerful ive expierenced and given the most relief. In theory they are unlocking the skull plates which have certain patterns, to allow all kinds of great stuff to happen.

Ill send you a couple links if i havent already. At least keep the card in your back pocket and ill share my experience <3...

Hard to explain what i want to say.... thought i shared this link w u b4 but i think its a decent vid on kinda whats going on anatomically.

It is claimed to help fibro, depression, mental clarity and a host of other things. It definitely gave me mental clarity and loosened the whole body.

I also think big power hides naturopath doctors and other unprofitable healing aids such as dmso which ive also done. Dmso is not pattenable, therefore no $ for big pharma.

Most the research ive done on NCR was fairly hidden and also goes by dif names.

Also 4 holistic doctors here in S.fla were mysteriously murdered. Dr Bruce being one of them.

Just sending a link like i said and hugs x

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Interesting
How long have you researched on this?

Thank you for a great post about fibromyalgia. Not sure when it started with me, have had several stressful situations over the past ten years. My work is very physical and certainly does not help with the discomfort, but I am not one to sit around and watch the world go by. Have experienced everything you mentioned and have found some relief with cymbalta, although it has some weird side effects. Food, and the weather do make a difference in how I feel.
Just thanks so much for taking the time to inform others that this is a real illness. 🐓🐓