Arnold The Brave aka @cryptopie

in #life7 years ago (edited)

A recently sent some personal items in the mail to Arnold Martin @cryptopie.

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My bravehearts777 medal and gold Coast Marathon finishers shirt. This event was the last thing I did before I crashed.

Both items were decorated with my distinct scribble.

@papa-pepper has photographic evidence of these.

They are winging their way to the Philippines now, by registered post.

I wrote about the reasons in a recent post.
My main aim was to reveal that the person in the photos was the person posting.
https://steemit.com/life/@girlbeforemirror/steemit-has-changed-me-and-saved-me-in-unexpected-ways

I have written messages to @cryptopie a few times using the word transparency, to encourage him to share important medical and personal information in the hopes that he will find the help he urgently needs.

Well it seems he out did everyone on steemit regarding transparency.

Using the phrase Transparency himself he posted his address, a map and an invitation to his home.

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https://steemit.com/philippines/@cryptopie/where-does-cryptopie-lives

That to me is the actions of a person who is desperate for help.

He has also invited anyone close by to attend his appointment tomorrow so he can get some good quality images of documents.

"4th floor of the Alta medical Bldg. at malolos. So if you happen to have the time, you can be there with me and take photos with me. The clinic starts at 2:30 in the afternoon."
https://steemit.com/philippines/@cryptopie/dear-diary-my-plan-for-tomorrow


I planned to write a follow up post after he received my package.

Which was sent to the address that he disclosed in his recent post btw.

But I have to go back to hospital my self.

I received a call yesterday from my doc.

My kids are upset, but my husband and I know I have to go.

All we know is I am going for about a week for tests.

We need answers. I am getting weaker and the pain harder to manage.


I wish Arnold could do the same.

Go in and stay for the work up he needs in order to tell us all what is required for his lifesaving treatment.


I'm scared to go. But I am nothing at the moment.

I just lie around waiting and getting weaker.
And losing hope.

The hope part is the clincher.


I have been emailing and sharing @cryptopie's story, because I know how it feels to just lie around losing hope.

As he continues to bare his soul and every aspect of his life, please invest a little hope in people.

Chance yourself on believing that outside of view from your own window onto the world, people like Arnold do exist.

His condition is rare.

But it is only rare because people in a place where they can access appropriate care as a right instead of a privilege would never progress this far.
It is a result of long term substandard dialysis, neurology and endocrine care.

It is the face of the inequity of global health care.

Steemit has given those in isolation a voice. Don't ignore it.

From my research there are ways to crowdfund and direct resources for medical treatment, that can ensure that the right person receives your contribution.

I know there are many more savvy minded people on steemit than me.

Imagine if a few minds got together and worked on a way that each of us could contribute in a way that is guaranteed to change his outcomes.

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Please give him some of your time to create some hope and possibilities.


I don't know what is in store for me.

But receiving a phone call from a doctor that is interested in trying, when others have given up.

Gives me hope.

Sometimes hope changes everything.

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Thank you for this support article @girlbeforemirror
I am just speechless about what you are doing, all your concern, care, and should I say Love that you are giving for me. I do appreciate it, all of it.
Although you also have a serious condition involving your spine and your pain, you still are managing to work for my similar need for help.
I say let's just do what is necessary, what we can do, especially here at steemit where we can see immediate results. There are also capable people here that can help, all we have to do is try to let them know that there are people who are in dire need of rescue.
If only my condition is not progressive it will be still OK but it just gives me fear and worry as this rare case will make me lose my eyesight.
There is still hope, I will still keep on fighting.

Wow, @girlbeforemirror that is amazing you are giving the shirt and medal. Brought tears to my eyes. Im happy to hear a doctor is trying and I hope everything goes well. This stuff is so hard to deal with. Blessings to you and your family

My thoughts are with you and @cryptopie - Keep up the hope!

This post has received a 7.88 % upvote from @booster thanks to: @shortcut.

I hope all goes well for you this week. Am so glad you have a doctor who is caring and yes, healthcare horrific for so many around the world. Mine has been bad enough due to being on a small island and dick doctors, but to have NO ONE and NOTHING? that's heart breaking. decent health care should be a basic human right. Love to you and to arnold. xxxx

Do you know if your package arrived yet?
Someone is bugging cryptopie on his latest post, saying that they don't believe that he is really the person in the picture. I'ld love to be able to give them your update.
Thanks and take care,

Hi
I have messaged @cryptopie on discord. It seems to have gone missing. My husband is going to the post office today to find out what happened. The tracking isn't working. I will have an answer in a few hours. I can tell you I sent it to the same address he put on a Google Map image of his home and the same town @dandelion and her husband visited.
I haven't been on steemit lately because of my own health and family obligations. But I will sort this today and send another asap if needed. I know you have remained very much engaged and supported. I would like to speak with you on steem chat or discord (or any other method you prefer). I know many local people are involved, but international support is so important.

Thanks. I just sent you a message on Discord (@girlbefore)