Steem Cameroon Contest: Cloves syndrome awareness day (Cameroon)

in Steem Cameroon2 years ago (edited)

INTRODUCTION:

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(Image edited by @metugejacy20)

Cloves syndrome awareness day is a global day chosen to raise awareness on Cloves syndrome (a rare congenital disorder that causes overgrowth of body parts and sometimes Vascular problems). The disorder is caused by a gene mutation. The chosen date is August 3rd of each year. On this day, people talk about cloves syndrome in their different communities or groups and organizations because very few cases have been identified round the world, the majority of which are kids and infants.

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https://www.healthline.org


In most countries around the African region, the day isn't commemorated by the entire population. But in my country, some organisations such as the Cloves syndrome community (with just 3 members being Cameroonian), the HLFA (healthy living for all) in Buea and individuals who are invested in the medical field just as I am make sure to raise awareness by holding seminars, creating blog posts and sharing to their various social media to send the word out. Green (the color of cloves) is worn by such people on the 3rd of August to commemorate the day accordingly.


IMPACT ON THE COMMUNITY:

• Given that most communities are unaware of the existence of cloves syndrome, the awareness helps in spreading the knowledge of the disorder and opens the eyes of the people to certain health aspects thereby killing ignorance.
• Most importantly, it helps children with cloves syndrome feel less alone and hopefully gives them a sense of normalcy to know that they are not alone in the world. That they aren't bewitched or strange in any way.
• Finally, with the total number of known cases being rounded up to just ~200 people in the whole world (according to healthline.org) there is little or no funds going into research on the treatment of cloves syndrome. But with this awareness day, there could be discovery of more cases that could lead to different organisations and governments gaining interest in the topic and offering funds for the necessary research.


This week, I would recommend that an awareness day be created on the topic of"Stigmatization". This could preferably be on August 6th. A weekend, so that the majority population is free to spread the word of the effects of Stigmatization in the society especially with regards to mental health.

@clarence25
@othentic1
@santosbass02

Thanks for reading ❤️

Sort:  
 2 years ago 

@metugejacy20, Its amazing to learn about the cloves syndrome awareness day. You are right by saying that very little knowledge is circulating about this disorder. Awareness creation will sure contribute in identifying the many others who might be suffering from this disorder.

Great job, courage and I wish you all the best.

 2 years ago 

Thanks @tignoga. I'm glad I could spread the knowledge. Today is the day and green is the color. Help spread the word 😁

 2 years ago 

Sure I will

 2 years ago 

Wow I don learn about clove syndrome thanks to you mama welcome back to giving us interesting posts

 2 years ago 

Thanks for the warm welcome. I'm glad you learnt something

 2 years ago 

Your post has been supported using the Steem Cameroon Curation Account.

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 2 years ago 

Nice entry you've got here my dear.
Good luck

 2 years ago 

Thanks boss.

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