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I just found them via Google and there are in the Netherlands. Frequently together with organisations about epilepsy. I just googled for the syndrome.

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Fuck you Justin, we're moving to Hive.

I can imagine how it feels. I will.write and share and hope people respond and someone out there turns out to be a big help.
💕☘

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Thank you so much wakeupkitty! You are all good people and I hope everything you're doing to help me comes back to you a hundredfold:)

Take good care of yourself! Moms are easily forgotten. I hope it will help 💕☘ for all of yoy.

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