RE: Am I a writer? Am I an artist? Who am I?
I didn't manage it lol. I missed the first bloody prompt and got knocked out before I started lol. My hands and neck are effed as well. I'm doing some presurgery work ups too, I had a bucket load of injections to the spine yesterday to hopefully figure out Which area to target. Will see surgeon again next week to decide what course of action to take. C Spine - neck surgery, it has gotten so bad it effects my peripherals and my hands aren't working too well. I am hoping he will propose something soon.
I miss a lot of great posts because I can't scroll around much, any activity makes it worse and I'm supposed to be taking it easy for a few days. If I took life any easier I'd be dead, I do nothing. so please send me links of your work so I don't miss them.
We are a good pair. Truly the raven sisterhood is a funny thing. When I replied before I didn't realise it was on the Raven head post, he will be thinking, who are these 2 bonkers bird ladies, one is obsessed and terrified all at once.
When you first pooped up with a long name starting with girl, and raven poetry to die for, I was instantly yours you crazy bint, I love you. X
haha re: raven :) - shit re all else! what's up? you said connective tissue? my hands are fucked and i don't quite know why - not the arthritis exactly - just some shitty complication which is possibly carpal tunnel but maybe not? argh - i'm seeing someone else for a second opinion before having my wrists sliced open (OMG!) I'll check out your reply on raven head now hahahahah and UGH hate taking it easy arghghghghg i've had too much of that and i feel for you sooooooo badly! Though sounds like your medical care is a billion times better than mine was. (Took them 18 months to be bothered enough to investigate my hips properly and to discover it was the same problem they were already treating me for - what a bunch of utter muppets. anyway, going to try and video new poem TODAY!
I was told carpel tunnels by one Muppet too, but I knew it was the nerves from my neck, and I do have arthritis in my hands, and degeneration in most joints actually.
I have Ehlers danlos syndrome which presents like hypermobile joints, but can effect any connective tissue in the body. It is a collagen gene defect.
So yep, my hips aren't good either, sacroiliac joint not brilliant. I tend to dislocate joints because the soft tissue ligaments, tendons are faulty. Over time popping joints back in has caused damage. It is not new symptom wise, but the diagnosis and degree to which it has escalated is. The last 18 months particularly, but started to show worsening signs I ignored since 2014ish.
It may look like arthritis but a rheumatologist won't find inflammatory markers because it is a gene problem. If they are unaware of connective tissue disorders they will likely call it fibromyalgia or complex regional pain syndrome...something like that. I have met too many Muppet's lately. I'm sick of all of them.
The first thing I noticed was my hands go, in pregnancy. I got up in the morning and I can't use them. I still can't, it takes a while to get them going in the morning, they feel swollen but don't always look like it. They called it carpel tunnels, maybe it was to a degree, it happens in pregnancy but it was more than that. They just go for the simplest single label, there is nothing simple about my problem unfortunately.
This UK site is probably the best I've found.
https://www.ehlers-danlos.com/what-is-eds/
I have met so many people recently with EDS. I set up a charity for people with autoimmune arthritis and it seems to have flushed out a lot of people who have other kinds of similar problems that unfortunately I was not aware of before and our constitution doesn't cover. I have sero negative arthritis - basically spinal and peripheral joint disease. It affects absolutely everything especially my tendons and ligaments too. I deal with it very well naturally though it hasn't been easy. ESD and hypermobility are all pretty s***. I had consultants tell me I had these problems and fibromyalgia when I couldn't walk for 18 months and basically them saying they couldn't do anything. I suppose in that respect I was lucky when they found out it was the arthritis all along. I know nothing about those other conditions you mention and diet - all I know is it helps me hugely. I am so sorry you are going through all this. I also regularly find I can't use certain things like my hands on My Left Foot. I've no idea what is up. I just try not to stress it anymore. Ive givrn up expecting much from doctors. Xxxxxx
https://steemit.com/poetry/@girlwithoutwings/on-ravendale-hill-part-1 here you go sweetie. Enjoy <3 just done part 2. Will load at some point xxx
It is OK. When you materialised I knew girl..... Who's words were from the god's who spoke of raven's had more than black birds and a similar username.
You are an angel. I showed your last spoken word to my husband and daughter and they both agreed you have the voice of an angel.
Thank you for your kind words. Do you know what I would really love? To see a video of one of your spoken words. I loved what you left for me in the comment for the poem I did - it was so beautiful - the verse At The End. Truly kindred spirits xx